Parents hope son’s heartbreaking story raises awareness of rare disease few have ever heard of

A Colorado family is sharing the story of their five-year-old son, Justin Vu, who passed away from the rare Clarkson's disease. By highlighting his heartbreaking experience, the parents aim to increase public awareness of this uncommon condition. Their goal is to ensure that more people learn about the disease in hopes of saving other lives in the future through better recognition and understanding of the illness, as few have previously heard of it.